Fontan I

Faith had her cath almost a month ago and we have been ANXIOUSLY waiting to hear from Miami Children's Hospital to schedule her 3rd stage surgery. Her local cardiologist told us he conferenced about her case on April 1 and that we should hear from MCH within a week to schedule. We don't want to wait too long because
a. want to get it over with and get Faith back to healing and growing
b. if it takes too long to schedule they will have to do another sedated echo, etc. and she doesn't need any additional unnecessary testing.

I wait a week and a half and since they haven't called yet her cardiologist gives us the direct number to call and find out what is going on. This direct number goes to a team of cardiologists asst., not the actual cardiac scheduling department, so the asst. transfers me to scheduling where I leave a voice mail. OF course they don't call back and after 24 hours I try again and leave another message. Another day and I call back getting irritated. This is a big deal, it is a major surgery, we are anxious parents, we have jobs waiting on us to let them know when we will be taking off, I have a teen to coordinate schooling with...
Luckily the asst. is really nice, they couldn't find her file or the info. from Orlando or where she had been conferenced, so she tries to help me figure this out. She goes to look for the file, can't find it so she emails everyone and long story short today she found her! When I called back this morning to follow up she tells me she found her on the conference notes and they found the information sent from Orlando. She is surprised I haven't already heard from the scheduling girl/lady/person and transfers me to her where it just rings and then hangs up on me....